National links –

click or tap on the name to go to the website

 

AccessAble – the new name for DisabledGo
accessibility information to work out if a place is accessible for you

 

Action for Children – Parent Talk
free, down-to-earth advice for parents of children aged 0-19

 

Ambitious about Autism
national charity which provides services, raises awareness, and influences policy

 

AskSARA
award-winning online self-help guide
expert advice and information on products and equipment for older and disabled people

 

Autistic UK
An Autistic People’s Organisation (APO) – an organisation run by autistic people for autistic people. email info@autisticuk.org

 

Bag Books
charity publishing multi-sensory books for people with severe or profound and multiple learning disabilities. Email office@bagbooks.org

 

BBC Ouch – the cabin fever podcast

 

Beyond Words
charity that provides books and training to support people who find pictures easier to understand than words.

 

British Institute for Learning Disabilities (BILD)
Working to improve the lives of people in the UK with a learning disability

 

Cerebra
A charity dedicated to helping families with children with brain conditions discover a better life together. 01267 244 200 enquiries@cerebra.org.uk

 

Challenging Behaviour Foundation
Charity for people with severe learning disabilities whose behaviour challenges
general enquiries email info@thecbf.org.uk telephone 01634 838739
information and support email support@thecbf.org.uk telephone 0300 666 0126

 

Choice Forum The UK Learning Disabilities Forum
Since 2000, the Choice Forum has been the place to discuss issues affecting the lives of people with learning disabilities in the UK
The Choice Forum incorporates the PMLD Network

 

Choice Support
A national charity, formed in 1984, supporting people with autism, learning disabilities and mental health needs

 

Contact for families with disabled children
helpline 0808 808 3555 email info@contact.org.uk

 

Council for Disabled Children (CDC)
umbrella body for the disabled children’s sector with a membership of over 300 voluntary and community organisations and an active network of practitioners that spans education, health and social care

 

Disabled Children’s Partnership
major coalition of more than 80 organisations campaigning for improved health and social care for disabled children, young people and their families

 

Disabled Living Foundation – Living Made Easy website
impartial advice and information website about daily living equipment and other aspects of independent living

 

Disability Grants – Guide to Grants for the Disabled

 

Disability News Service (DNS)
run by John Pring, a disabled journalist who has been reporting on disability issues for nearly 25 years. Reporting on issues that affect the lives of disabled people, such as discrimination equality, independent living, benefits, poverty, activism and campaigning and human rights, but also covers employment, transport, education, housing, crime, and arts, culture and sport.

 

Disability Rights UK
led by people with diverse experiences of disability and health conditions, from different communities

 

Disability Law Service
Provides specialist legal advice and information for disabled people, their families and carers. telephone 020 7791 9800 email advice@dls.org.uk

 

Down’s Syndrome Association
DSA Helpline 0333 1212 300 Monday to Friday 10.00 am – 4.00 pm

 

Down Syndrome Development Trust (DSDT)
Service includes support to individuals and their families via research based training workshops, outreach, educational enrichment and social groups for children and young people living with Down syndrome

 

Down’s Syndrome Research Foundation UK
Down’s Syndrome research charity

 

Down Syndrome Education International
We work to improve early intervention and education for children with Down Syndrome around the world

 

Down’s Syndrome Heart Group
Down’s Heart Group is a charity offering support and information relating to heart conditions associated with Down’s Syndrome. telephone 0300 102 1644

 

Easy Health
over 500 health leaflets that include pictures and very simple text, accessible to people with lower literacy levels, and/or learning disabilities

 

Family Fund
Help for families across the UK who are raising a disabled or seriously ill child or young person aged 17 or under. telephone 0845 1304542

 

Foundation for People with Learning Disabilities

We believe that people with learning disabilities should have the same rights and the same choices as everyone else in society. email fpld@fpld.org.uk

 

Government website – disabilities

 

Hft
Hft is a national charity providing services for people with learning disabilities.

 

Independent Parent Special Education Advice (IPSEA)
offers free and independent legally based information, advice and support to help parents get the right education for children and young people with all kinds of special educational needs (SEN) and disabilities.

 

L’Arche UK
L’Arche is a worldwide federation of people, with and without learning disabilities, working together for a world where all belong

 

Learning Disability England
Membership organisation bringing together people with learning disabilities, families, professionals and organisations.
telephone 0300 111 0444 email info@LDEngland.org.uk

 

Leonard Cheshire
support disabled people to live, learn and work as independently as they choose – whatever their ability. email ​​info@leonardcheshire.org telephone 020 3242 0200

 

Mencap
valuing and supporting people with a learning disability, and their families and carers. Learning Disability Helpline Monday to Friday 0808 808 1111

 

National Autistic Society
charity for people on the autism spectrum and their families
Autism Helpline telephone: 0808 800 4104 Monday to Friday 10am – 3pm

 

NHS England and NHS Improvement Learning Disabilities
working with the Government and other health and care organisations to make sure that people with a learning disability, autism, or both, get the best possible care. Also produce an Easy read newsletter

 

Norah Fry Research Centre
Leading national centre of excellence for applied social research and teaching, making a positive difference to the lives of disabled people

 

PAMIS – Promoting a more inclusive society. Pamis support people with profound and multiple learning disabilities, PMLD – their families, carers and professionals

 

PMLD LINK was established to make a difference to the lives of children and adults with profound and multiple learning disabilities (PMLD) email info@pmldlink.org.uk

 

Positive about Down syndrome (PADS)

A website by parents for parents and parents to be. telephone 07814 929306 email contact@positiveaboutdownsyndrome.co.uk

 

React – Rapid Effective Assistance for Children with potentially Terminal illness

charity working to improve the quality of life for children with life-limiting illnesses living in financially disadvantaged households throughout the UK. telephone 020 8940 2575 email react@reactcharity.org

 

Respond
national charity providing therapy and specialist support services to people with learning disabilities, autism or both who have experienced abuse, violence or trauma. email admin@respond.org.uk telephone 020 7383 0700

 

Seeability
specialist support, accommodation and eye care help for people with learning disabilities, autism and sight loss. telephone 01372 755 000 email enquiries@seeability.org

 

Sibs – For brothers and sisters of disabled children and adults

 

Scope = Equality for disabled people
telephone 0808 800 3333 email helpline@scope.org.uk

 

Together Matters
an organisation with the belief that talking and working together helps to make better things happen in the lives of people with learning disabilities and their families. email info@togethermatters.org.uk
Together Matters focuses on 4 key areas

  • Planning for the future
  • People with learning disabilities growing older
  • Checking the quality of support
  • People with learning disabilities who have a caring role

 

Transport for All (TfA) – Access, Rights, Advice
pan-impairment organisation, guided by the passionate belief that all disabled and older people have the right to travel with freedom and independence

 

United Response
charity that provides support to people with learning disabilities, autism and mental health needs, at home and in the community. Produce Easy News the first news magazine designed to be accessible for people with learning disabilities